What kinds of information does CRISP have about me?

Health care providers choose to share different types of health information through CRISP that they think would be helpful for your other health care providers to know about you. CRISP may have access to health records from your doctors, hospitals, and pharmacies you’ve visited. Among other things, providers may share your test results, radiology images, or notes about your care. They may also share a short summary of important information about your care that they want other health care providers to see.

CRISP is connected to all 48 hospitals in Maryland and shares hospital information such as discharge paperwork and labs with your other providers. Some types of sensitive information, such as any information about treatment you may have received from an addiction treatment facility, can only be shared with your written consent.

If your health care provider shares information with CRISP or views your information in CRISP, they will let you know this through their Notice of Privacy Practices, a document that you get when you check-in for an appointment.

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How is my data used?

CRISP follows all federal and state laws and shares your data for these purposes: health care treatment, care coordination, quality improvement, public health, and research. CRISP does not share any of your information for health care payment or marketing.

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Your health care providers who use CRISP can view your health information to help keep you well.

CRISP only allows providers to use health care information that its Clinical Advisory Committee think will help improve health care. The committee is made up of both consumers and providers of health care. The purposes that have been approved for using data are listed below. If the Clinical Advisory Board decides to allow other uses of your information, those uses will be added to the list below.

Sharing information for

The main reason your information is viewed is to help your health care providers give you high quality care. CRISP follows all state and federal laws and only shares your health care information with doctors or other members of your health care team who have treated you recently, except in the case of an emergency.

Your health care provider may search CRISP to see the results of a recent lab test or notes from another doctor. The emergency room doctor may search CRISP to see if you have any allergies to medications.

CRISP shares information with individuals who help you manage your health care. These care coordinators are often nurses or social workers. They may work with a hospital you recently visited, or they may work with your primary care doctor or your health insurance company. They view your health care information to help you stay out of the hospital and get well. They also get alerts sent directly to them when you are admitted to a hospital or when you visit the emergency room. They use these alerts to help you follow instructions from the hospital and check in on your health.

For example, a nurse from your primary care office may be working with you to manage your health. The nurse is signed up to receive hospital notifications about you, and when he sees that you recently visited a hospital emergency room, he may contact you to find out if you need help with your medications or setting up an appointment.

Also, a hospital social worker may be able to search CRISP to find out who your primary care or other specialty doctor is, so she can help you schedule an appointment.

CRISP helps doctors and hospitals report certain diseases, like Tuberculosis, to the State Health Department. This helps prevent outbreaks of infectious diseases. Since this public health reporting is required by law, your diagnosis would be shared with the health department even if you opted-out of CRISP. It will not be shared with anyone else. CRISP helps prescribers and patients with the safe use of prescription drugs through the Prescription Drug Monitoring Program or PDMP. The PDMP is a program managed by the State Health Department that allows prescribers and pharmacists to see your prescriptions for controlled dangerous substances, like opioids. You cannot opt-out of the Prescription Drug Monitoring Program because it is also required by law.

CRISP shares information with health care providers to help them improve their health care practices and improve your treatment. For example, your doctor may want to learn whether she should start a diabetes education program. She can search CRISP to find out whether her patients with diabetes are visiting the hospital often. This information can help your doctor decide whether she should start the program to help her patients get well.

CRISP may also provide information to researchers who study how people use health care and make care better. All requests for data for research go through a long approval process and are reviewed by an expert panel that includes a patient advocate before the researchers may view any information in CRISP. If a researcher wants to use your health care information where they can identify you personally, they must ask you first and get your permission. You can find more information about the CRISP Research Initiative and the research we support here.

CRISP provides reports to hospitals and State officials about hospital use to help them improve care and lower costs. Most of the information used for the reports is from the hospital claims data. This is the information the hospital sends to your insurance company after your visit.

Because some of these reports are required by law, you are not able to opt-out of these hospital reports. Patient names are not a part of these hospital reports. If you opt-out of CRISP, your information will only be included in the reports required by law and not in any other reports that hospitals use to improve your care.